Archive for the ‘Pain’ Category


It’s apparently breaking news as of last night? by the New York Times that Donald Trump knew two weeks prior to his inauguration that Russia interfered in the election in order to make sure he would be elected; with the express permission and direction of Dictator Putin. He knew that it was done so that the election would turn out in his favor. Every single time he has said he didn’t believe there was election interference, he lied. Every time he has said there was, “No colluuuuuuusion,” it was a lie. Every time he lies, it’s obstruction and for that matter, a cover-up.

If you’ve followed or read my blog for the past two or three years, you know that none of this is breaking news to me. Maybe some of you thought I was a little paranoid. 😉 That’s okay. Plenty of people don’t listen to anything I say, thinking I don’t know what I’m talking about. I’m used to it. I live in Connecticut, after all. I mean, we may bleed Blue for the most part but we also just had a guy on a dairy farm just get kicked in the head by a cow. And the news anchor had to make sure to say,

“He did suffer serious head injuries, but no information on his condition.”

Yes, he would since he was kicked in the head by a cow. Being in his 20’s wouldn’t keep him from avoiding serious head injuries.

I wish I could say that the things that have been leaking out, and the indictments, subpoenas, plea deals, have been vindicating. The problem is that we’re still stuck with a treacherous guttersnipe in the Oval Office. The problem is that I didn’t want to be right.

I never, ever wanted to be right. I wanted to be proven wrong. I want every single elected official we ever have to succeed, especially a duly elected president. Hell, even a president that was inserted by Russians… I was in a position where I felt forced to “give him a chance.” I wanted him to succeed. I promise, that’s the truth.

Giving someone a chance doesn’t ever mean ignoring the truth. It doesn’t mean ignoring what you already know about someone. It means giving someone a chance with a healthy skepticism and a willingness to continue to ask questions and research and fact check in order to protect yourself and others.

Investigating the election fraud and other crimes stemming from it isn’t about, “being unable to let go of Mrs. Clinton not winning the election.” It’s about the undermining of our election, our democracy, our Republic and the fact that one of the candidates in the election… the candidate that did end up in the Oval Office… was part of the tampering. He encouraged, took part in, and continued to take part in espionage.

I think the scramble by the White House, Sarah Huckabee Sanders, Lindsey Graham, hell even Sean Spicer to rehabilitate Trump’s current Russian joint presser statement into something means the opposite of what he actually said is a clear indication that he meant what he said. He has always said that he doesn’t need or want other people to explain what he says because he always says what he means. And that presser? That was clearly scripted. He knew what he was saying. He was proud of himself. He was smug. The damage control is something that I’m sure Trump doesn’t even believe needs to be done.

Again… he’s told us who he is, so why don’t people believe him when he shows us?

This is not Democratics vs Republicans vs Independents vs Green Party. It’s about willingness to side with truth and justice, patriotism and America, or willingness to side with a traitor and not care about the lies and treason in favor of a larger, damaging agenda. It’s also about voting vs non-voting.

At this point, it’s also about whether people are reformed Trump voters. I’m not touching Republican, specifically because I know people of all political affiliations voted for him. I’m not touching GOP either. And yes, I’m making a very wide line between Republicans and GOP. Because the GOP has become the tool of the Tea Party. What Conservative stands for now is a warped stance of conservativism. I’m a recovering Republican, so I know. I’m heartbroken over what’s happened to the party as a whole.

That’s a whole different blog entry.

I don’t have hard feelings for the voters at this point because voting has been effecting change in special elections everywhere. I also have hope for November 2018 midterm elections. I believe that most people are good. I believe that people vote with hope in their hearts.

There’s still hope. We have a free press and freedom of speech. The First Amendment is our most important Amendment of all. Which reminds me, if you haven’t already, download a free copy of the United States Constitution. It’s so, so very important. It’s law that’s higher than the Oval Office.

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Image from Zimbio

Doctor Who: The Doctor, Jodie Whittaker

Have you ever had a wonderful doctor that you actually recommend to people because you genuinely feel they’re splendid in their job?

They’re the kind of doctor who keeps up on their specialty and know what they’re talking about. They have a great bedside manner. The kind of doctor who is willing, and even encourages back and forth dialogue. The kind of doctor that you want to hug during emotional moments, and on the way out of the appointment.

They even have excellent office staff, nurses, medical assistants, and APRNs. How often does that trifecta happen?

How often do you really get to keep that sort of doctor? Whenever I have this type of Wonder Doctor, I always wait for the other shoe to drop. Whenever I tell other people about my Wonder Doctor/s I can see the initial look of doubt on the face of the person I’m telling.

The more I mention my Wonder Doctor/s the more it seems they’re actually more elusive than *loyalty, devotion, selflessness, unflagging optimism, and unqualified love. 😉

In very early December I called the office of my pain management and spine specialist doctor. I needed to confirm my upcoming appointment and let them know I needed refills prior to the appointment since we misjudged the timing during scheduling the last time I was in the office. The nurse answering the phone said,

Oh… you didn’t get the letter?

Um, no?

And I didn’t call you? You were on my list my call, I could have sworn.

Well, no, James [name has been changed to protect Todd] you didn’t call and I didn’t get a letter (nervous laugh). You’re starting to worry me.

I’m so embarrassed (really, really nervous laugh from James). Doctor Awesomesauce is leaving the practice. I swear a letter went out, but sometimes … I’m so sorry you didn’t get a copy.

And that’s when I burst out crying while on the phone, and apologized to James.

I’m so sorry you found out this way.

Can you tell me why she’s leaving? Is she going to a different practice?

She’s not. She loves this place, but while her family is still young and her child/ren is/are small she wants to be sure to be there as they grow. It’s very important to her.

I understand that. I was a stay at home parent for years, and am one again. (wipes snot and tears) I wish her well, but of course I have to be selfish for a moment. Will you be moving to the new doctor’s office?

No, unfortunately. Thank you for asking, you’re the first.

Sure. You guys have been great. Are you able to tell me who’s taking over the practice?

We don’t know who’s replacing her yet, but it’ll be a few months. It shouldn’t be past March, however someone will call you sooner than that. If not, you should, um… get a letter. With, um, all of the contact information for the new doctor.

NOTE: I did not get a call. Nor did I get a letter. Shocker, right?

I did get my usual 3-month refill for my daily medication, and single month refill for Tramadol. That helped ease some anxiety.

She was my White Rabbit of Wonder Doctors. When I got off the phone with “James” I cried for what felt like hours. Deep, sobbing, grieving cries. Much of it was because of what I described above, and much of it was because this I felt out of control. I felt anxious from not knowing who would be taking over the practice, and not knowing when that would occur. That was a rough, impossible weekend.

Throughout December, January, and February I called the number listed on the practice’s web site for Pain Management and Spine Specialist section. It directed me to my old doctor’s phone number, so I left messages there letting them know I was still interested in setting up an appointment with the new doctor. The longer I went without knowing anything, the more anxious I felt. In March I started to panic when my prescription for my daily medication reached two weeks. When I reached only a few days it was full blown anxiety attacks, especially since my pain levels have been increasing versus simply being a flare up.

I called my primary care doctor at that point and explained the situation. She was the one who referred me to Wonder Doctor in the first place, especially as friends in and out of the practice. She insisted on an in-office appointment so I complied and went in the next day. Of course we talked about my pain levels, which she keeps close track of along with the rest of my health, and updated all of my medications as we do every appointment. We had to remove the Zoloft since I was getting over a severe allergic reaction.

She agreed to give a one-time refill on my Gabapentin/Neurontin, which not only helps the Fibromyalgia but the myofascial pain, carpal tunnel, and osteoarthritis. She then asked me if I expected a refill on Tramadol. I hadn’t asked for one since I had been without it since mid-February after stretching it out. I tend to try to stretch it out for emergencies, but got yelled at by my pain doctor for that since she said it’s not managing my pain properly. No pain medication taken daily can relieve more than 25-to-45% of chronic pain, and that’s why Tramadol when used properly is given to take 2X a day 12 hours apart with the exception of specific, special instructions for, well, exceptions. When I explained what Wonder Doctor and I discussed and usually did, and how I handled Tramadol, she looked through the shared notes on the system and saw I wasn’t lying. She called in Tramadol too.

In case you couldn’t tell, I really, really love my PCP. Since at least as early as 2004. I’m still waiting for the other shoe on her to drop. ::sigh::

When I went to the reception nurse to check on my next appointment, she gave me the number for the new Pain Management and Orthopaedic Specialist taking over Now SAHM Doctor and set up and appointment for me for two weeks later. That was early-ish April. I prepared myself for a doctor who would be like my first Rheumatologist.

He’s young, tall, seems to know his stuff regarding my medical issues, and he’s open to back and forth discussion. He’s open to continued research. He’s open to discussing how alternative therapies can help support relieve pain so that any pain medication I take is at minimal dosage. After that appointment, we had a check-in two weeks later since we adjusted my meds and got results from a urine test. At that appointment we both agreed to continue treatment, and both signed the contract regarding opioid use and other pain med usage, how to behave in the office, how to use (or not use) alcohol and other drugs, how to approach ERs and hospital visits, how to approach other doctors, etc. He’s really, really thorough.

I’m waiting for the other shoe to drop.

If that shoe does drop, I’ll have to remember that when God closes one door he always opens a window*.

 

*Full quote with thanks from  John Grogan:
Many of the qualities that come so effortlessly to dogs – loyalty, devotion, selflessness, unflagging optimism, unqualified love – can be elusive to human.

*2 I’m sorry not sorry for mixing metaphors. 😉

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I have a lot of thoughts that are combating the issue of palliative care regarding in-the-home versus in nursing homes. In the early-ish part of the summer we received the news that a nursing care home finally had an opening for both of my grandparents. I should clarify that the “finally” part is really due to the fact that it took a long time for them… well, I should clarify that “them” is really my grandfather agreed to the move and my grandmother threw the mother of all tantrums, but relented. Once my father and uncles made the decision for my grandparents, and once they informed my grandparents, it only took a month or so for a health care facility to open up space for them.

There was relief in this. A lot of relief, actually. The fact that they would have on-site 24-hour nursing care and a doctor on staff. Their doctor would be on call. Emergency care would be available instantly as needed. There are a couple of hospitals within minutes from the nursing home, if needed.

As soon as they moved in, my grandfather felt relief. He could see that he really wasn’t able to take care of her any longer. That was hard for him. Not being able to pick her up when she fell was something that had been normal for a long time, but the emergency paramedics finally told them that unless she agreed (or he forced her) to go to the hospital when they called 9-1-1 and she was clearly injured (she was) then they were going to stop coming to the house for her. Whenever he fell, he knew enough to go to the hospital. So that was the tipping point.

I spent my summer with the girls, off work and visiting my grandparents as they adjusted and took turns with one being upset at being there and the other saying how wonderful it was. Yeah. Being in your 90’s and married for 70 years can be like that.

A week ago we held a party for my grandparents at the nursing home for their 70th wedding anniversary, and it was beautiful. My grandmother looked beautiful. She held her rosary the whole time. As I was growing up, and let’s face it her entire life and mine since at 40-something I still feel as if I’m growing up, she always put herself last. She always put all of her focus on the person who was in front of her. She made everyone in that room feel special, and so when they came for her and my grandfather’s anniversary, they made sure that she felt special.

She wasn’t quite herself, and I could see that. The entire week prior, she’d been declining. Her mood shifted. She started seeing hallucinations. Night time was the worst. She hadn’t slept for two or three nights, and so the day before the party, when I visited, they made sure she slept. She was in a great mood for the party, but something had changed. She knew who we all were and why we were there but she heard music that we couldn’t. She asked and talked about odd things, for her.

And then this past week things got worse. My grandfather and uncle swore to me yesterday that she wouldn’t recognize me, but she did. She couldn’t move much, but when I held her hand she held it back as much as she was able, and even lifted it to point at my youngest daughter when she wanted to see her. She would pucker her mouth and move towards us when she wanted kisses. The whole time since being in the nursing home, that’s all she’s wanted, is kisses.

They swore she wouldn’t understand anything we said to her, but she did. She tried to talk to me, so I told her about my girls and my husband, how school and work were for them and how much I’m enjoying being a stay at home mom again. I knew she wanted to know about my pain levels too, but I avoided that topic. I told her that I finally prayed for what she had asked me to pay for, for her and that I’d done so at Church yesterday morning right before coming. She blinked a few tears and tried to nod, leaned for kiss, and I cried. I told her that I prayed for it even though I didn’t want it, because I know she needs it and she’s ready, and because I love her. I told her that I love her no matter what, and that I’ll be okay, that the entire family will be okay and she can let go.

We stayed, Darling Girl and I, for hours with her. It was very difficult to leave. We let the nurses know we were leaving, and then we saw my grandfather coming down the hall from his room with a priest trailing behind him. He told me that the priest just got there, and could I please stay. This was their parish priest. He was there for Last Rites.

So of course I stayed. We stayed. I held her hand. When she saw her priest, she gasped and said his name after not being able to speak for a few days. My grandfather was shocked because he had been 100% sure that she didn’t… couldn’t recognize anyone and nor could she understand what anyone said. It was beautiful from start to finish, and I never thought it could be. Maybe it was beautiful because it’s what she wanted.

Now it’s Monday morning, and my Darling Girl is sad. This is making her think about when my husband’s father passed away four or five years ago. It’s very similar, but she didn’t understand what was happening then. She told me this morning on the way to school that she’s remembering what happened to her Nonnu, but with a new understanding and so she’s feeling the experience of his death all over again as her great-grandmother is dying.

What she’s having trouble understanding is how my grandmother could be choosing to refuse to accept her medications, even the pain meds; how she could be choosing to refuse to accept any food or water. At 12 1/2 years old she knows how long a person can without food, and without water. I don’t know how to explain that to her, how a lifelong devout Catholic could choose, in her mid-90’s, to stop it all and to leave directions for the nurses, doctors, and family to refrain from any extreme lifesaving measures. It’s not rational to my daughter. I told her that as much pain as her great-grandmother is in from her illnesses, she’s in far more pain when she eats and drinks because her insides don’t work as well any longer, and she wants the pain to end. That didn’t satisfy her, and I know that nothing will. It sounds weak in my ears too.

Also this morning, Sweet Girl was having a really difficult time. She asked me last night to explain what was going on. She was more angry about getting up than usual, and complaining about everything that’s ever made her angry. I nearly lost my temper with her, and when I realized that my temper was shorter than usual I knew it was because of my sadness and the anxiety of the vigil. I realized my mistake, shifted gears and told her I recognized how sad she must be, and she could visit with me after school but that I won’t force her. She finally managed to cry, sad crying, and it seemed a relief to her to be able to identify with words what was wrong.

Dearest Girl, my eldest, turned 17 yesterday. She was amazing about me spending the day with my grandmother. She seems to be holding up well on the outside. In that way, she’s a lot like me. Being the eldest, like me, it’s natural. I know that she knows she can talk to me; she will when she needs to talk.

I don’t know how to do this. It just feels as if I’m doing it all wrong.

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That moment when, even though you feel guilty for multiple reasons, you do something that changes your entire life.

I turned in my resignation. I did it. I did it with a letter. This time, my boss didn’t try to convince me to stay after our long discussion. This time, she understood. 15 months ago, she convinced me to stay, “just until the annual meeting,” and I promised that I would. I guaranteed her those three months, and then, “we’d talk again.”

This time, when I turned in my resignation, she had already announced her own retirement.

I have five days left, including today, and I promised I would finish up my notes for my files. I hope that I can. I promised I’d stay an extra day or two if I couldn’t finish up by my last day. I’m a sucker. I really am. I don’t know why I didn’t just keep up with my notes as I went along.

Yes I do, that’s a lie. It’s because there’s been so much work piled up with my consumers and at some point, it was the paperwork that took the hit. Now I’m paying for it. It’s okay, I’m not taking new people on. I’m wrapping up and passing my people on to coworkers because that’s the way it goes here.

So today, there’s a Board Meeting. It’s a mostly-new board with a brand new Board Chairman and he’s pretty awesome. He’s got a lot of energy and brings a lot to the table. I forget how it came about, but at the annual meeting he ended up offering to buy me a cup of iced coffee as an apology for something, and I forgot today was the board meeting so he chastised me for not e-mailing him with my favored coffee flavor. I told him, then hedged, and told him that Friday is my last day because he offered to bring the coffee next week. He seemed genuinely bothered, so I explained about my health and current family concerns, but how much I love the agency and the people I work with. He asked if there was anything the board could do to keep me here and stated that if I change my mind after a period of time I’d be welcome back any time. I told him that meant a lot to me and I’d keep it in mind.

That was kind of awesome.

Now I only have to worry about getting my SSDI application completed, and waiting three months or so for them to respond with an approval. But I have to actually stop working first. I’m nervous. I’m really nervous. This whole thing is a huge life decision. It changes my life, my husband’s life, and that of my children. I realize that it also affects the work place that I’m leaving.

I have to be selfish this one time. I have to listen to my body and my family. I can even take this as a chance to talk to my daughters about how this choice still fits in with being a feminist.

It’s time to do this. The rest of my life is about to begin.

 

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Dear Kathy Griffin,

I hope today finds you, well, I hope it finds you well. I’m assuming that today, likely now to be known as Two Days After That Execution Video & Photo Shoot, you’re having some internal dialogue as you and your publicist continue with damage control. I’m not going to assume too much about your state of mind prior to that stunt; I’m not going to assume too much about your current state of mind either.  

I’m not interested in being part of your character assassination. I’m not going to flame you or try to hurt your feelings. My intent here is to try to bring you back down to Earth where the little people are. I’ve peripherally noticed your career, since I’m not a fan of your brand of comedy.  I do appreciate your activism and find your serious acting roles interesting.

So when Wednesday I only peripherally noticed your name in one or two vague Facebook statuses late in the evening, I assumed that you had simply pushed a sensitive political button for Republicans. I went to bed blissfully unaware. I had a nice balance of polite dislike-sometimes-like and respect.

Thursday morning (yesterday), the morning news and radio were kind enough to share all of the gory details of the “Execution Video” showing you holding the decapitated head of Donald Trump. They shared your interview about the video you made with Tyler Shields behind the camera. I saw the video with the blurred out “head.” Thanks to the internet, later on, I saw the more graphic images ie. no blurring. It drove the point home that the intended “joke” and the edginess, provocativeness of the juxtaposition between yourself and Trump and an ISIS terrorist and a hostage. They talked about your apologies, and mentioned how they’re not being accepted by organizations such a the VFW. They talked about CNN canceling your future job engagements with them.

It took a me a whole day to process what I had seen and heard. I’m appalled and disappointed. I’m sure you wish you had thought things through and considered that the only approving audience might actually be ISIS. I’m writing this because I’m not entirely sure that you understand why your apologies haven’t been accepted, and why many people won’t forgive you for a long time, if ever. Just think about the Dixie Chicks.

You’ve owned that what happened was wrong, yes. You say that you know it was wrong and won’t do it again. The tricky part here is that people aren’t convinced that you know why it wrong. I don’t think people are convinced that you know why people of all political persuasions and regardless of their opinions on Mr. Trump are as equally appalled. 

We’re already in a very precarious political situation. I know that I’m not saying anything new. It’s not a secret or anything even profound. It’s well known as a fact that it’s been a nonstop fiasco since this dumpster fire of a president announced his intent to campaign. I share the embarrassment over the fact that this man is sitting in the Oval Office. I share in the feeling of moral disgust and automatically-triggered rage and anxiety by simply looking at that man’s face.

We all want to have the balance of power restored. We all want to feel empowered in our lives, and to help others find that which makes them feel empowered.

This video didn’t come from a place of power or empowerment, and it doesn’t evoke those feelings in most Americans. There’s a shared shock, mortification, disgust, and genuine outrage across all party lines, and it’s one of the few things uniting those who support Trump and those who vehemently oppose him .

It doesn’t matter that he’s the most hated president in our history; that he’s made history by having the lowest approval ratings not only in his first 100 days, but of any president; He may be the biggest embarrassment in the international stage of leaders; He may be the most corrupt not-politician that ever politicked and the most corrupt individual to ever sit in that chair in the Oval Office; but none of that matters.

The problem is that what you decapitated wasn’t really Donald Trump. You didn’t figuratively cut off the head of the snake and speak out against his policies, ethics, morals, authority, or even his goings on in his personal life. Take Trump out of it. The decapitated head you held was not viewed as a symbol of removing Trump and his power and control. Those of us who are appalled could look at that head and blur out the features, and in our minds imagine any President in its face. We can imagine every President, past and future, in its place.

Because it’s not the current president whose head you decapitated.

It was the very notion of The President of the United States that you decapitated. You decapitated the very rich, full history, the respect, and honor of the Office of the President, and every other office. You decapitated the American People in a manner that was visually and morally repugnant; in a manner that was hateful, chilling, threatening, and violent. You decapitated the privilege, power, influence, giving the incredible potential and opportunity to do GOOD in that office, which is our right as The People under the Constitution.

We have problems in our nation, no doubt. That’s not news. Our country shares many of the same social issues and political issues as other countries. There’s corruption, racism, classism, ableism, and every anti-something you can think of. We have people that are anarchists and hate the government and authority. We have things to be embarrassed about and to apologize over.

But we are also a nation of advocates, allies, lobbyists, writers, artists, journalists, actors, parents, self-advocates, people that care and can make noise when our elected officials do and say things we dislike. We can speak out with our votes; writing letters; attending peaceful, non-violent protests; making phone calls; and anything else that’s protected by the Constitution regarding free speech. We want our messages to come from a true place of power, empowerment, peace, dedication, passion, advocacy, activism, patriotism, and non-violence as is our Constitutional right. This is what we take pride in, and what retains and maintains our Freedoms and our Civil Rights.

This is what Americans do.. we advocate, not decapitate.

I know it’s unlikely that you’ll stumble upon this entry, but if you do read it Ms. Griffin, I hope you read it with an open mind.

Sincerely,

Jessica

 

After The Press  Conference

EDITED TO ADD because I listened to that disaster of a news conference:

Back up the truck.

Kathy Griffin, you made a horrible mistake holding this press conference today. Justifying your actions and going on the attack and listing all of the horrible, disgusting things Trump has said and done as your excuse simply proves that you don’t understand why what you did was wrong. I’m no fan of Trump. I’m no supporter of the suppression of women’s rights. That doesn’t mean I can’t be appalled at that press conference.

It’s not appropriate to tell people to stop being angry because your feelings are hurt that no one “got” your joke and no one appreciated the art.

It’s not appropriate to accuse people of trying to suppress your right to free speech or violate your 1st Amendment Rights. You took offensive photos, and people are reacting. The nation is reacting. You say you don’t have a network behind you, you’re losing jobs. That’s not silencing you. It’s a business decision for them. It’s a consequence for you. People, men and women, have been fired for far, far less than what you did.

You have the right to free speech as long as it’s not hate speech; incites violence; can be considered a death threat or threat of violence upon someone else especially the president. You forget that people have a right to react to your free speech and what you believe is art.

I’m disappointed that you turned this into an equal rights issue for women. It would have been just as horrifying coming from a male comedian. It would have been considered just as inappropriate. This is what rich old white men say when they accuse us of “playing the woman card.” Turning on the tears and pointing out how you’re such a small frail woman doesn’t do any favors for you or for women. Your behavior in that news conference perpetuated every negative female stereotype, and as much as you want to claim Girl Power and pretend that this is about you being a woman, and there are some big bad good ole’ boy men silencing you poor little tiny female, you stomped feminism under your precious little feet.

There’s this thing where you tell a joke, and people laugh, and you know it’s funny. There’s this other thing where you tell a joke and no one laughs and you know it’s not funny. Then there’s this final thing when you tell what you think is a joke and literally everyone is angry and appropriately outraged, and you have to accept that maybe the problem isn’t everyone else.

Chastising others wasn’t the way to go. Humility was. Laying low and refraining from having a press conference where you said all of these things that you should have kept to yourself until you gained more perspective was the way to go.

You’ve only made it worse.

People don’t tolerate sorry-not-sorry nonpologies.

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As a life blogger, it’s not exactly a rare thing to have difficulty choosing a topic and writing about it. Writer’s block is a real thing. 🙂

What I’ve been having trouble with for the past month is on the other end of the writing spectrum of difficulty: I’ve been trying to write about the dumpster fire that is the current White House Administration and fraudulent president, but every time I try to write something it’s either obsolete before I finish writing or there are six other things that should either be added or have their own entries.

While I thought it would give me satisfaction to watch Trump go down in smoke and flames, while I dance around him pointing at those who voted for him singing, “Told ya so!” it’s really giving me no satisfaction at all. I’m not dancing. I’m not laughing. I’m not singing.

I never really wanted to do the dance. I do enjoy, a little bit, the occasional pettiness of telling someone, “I told you so,” but I’m sporting about it. I tell them ahead of time that if I’m right about something and they go ahead and do the opposite, that I’ll say, “I told you so.” I’m equally sporting in that if I don’t give the warning, I won’t say it.

I did want to be wrong about Trump with every fiber of my being.

I’ve prayed harder than I ever have in my life for his success; for him become a true patriot; for him to care about others besides himself; for him to be ethical, moral, kind, compassionate, generous, and to be so even when it’s in private and not a photo op; for him to be honest, truthful, and to expect the same high standards from those he surrounds himself with.

What I am is embarrassed, ashamed, fearful, and anxious that what I thought could happen was far exceeded prior to 100 days. Those feelings have doubled in the days since April 29th 2017.

America is viewed globally as weak and as a laughingstock. We are viewed as extremely volatile and dangerous. We are viewed as ignorant and undignified. After all, we “elected” a man without education, class, morals, ethics, refinement, nor any sort of interpersonal or soft skills and is utterly lacking in business skills or common sense.

Because I simply can’t get into everything without my skull imploding and my fingers turning bloody from typing, let me share this:

We have “no way to know” if the Russians bugged the Oval Office when they visited Trump the other day. No way to know? NO WAY to know? Please, Mr Tillerson… Rex…  Please Rex, give us something anything please oh please give us something more than “we have no way to know” please omg please are you fucking kidding me? We don’t have some way, I don’t know, using some sort of technology from one of our intelligence agencies or something to detect bugs? Are we really that inept? Or are we that broke? Do spy movies and TV shows have a bigger budget than the White House Security and NSA for really cool anti-intelligence spy intelligence technology shit?

How about you reassure us that the Russians being confused about what was supposed to actually be considered classified material during that 25 minute meeting isn’t far more concerning than it sounds? How about reassuring us about the fact that Trump shared 50 unscripted things with them? You know, classified thing; things he wasn’t supposed to tell them that are apparently, you know, considered classified. Were there any launch codes in there? Locations of black ops teams? Details about our fighter jets and missiles? Mrs Field’s Cookies recipes?

I’m thinking that what the Russians are really saying is,

“We’re confused. What classified intel do you think he told us… that we didn’t already know?”

I’m a mother. I’m a wife. I can read between lines.

It’s pretty easy to read this: stop saying that Trump “allegedly” told the Russians classified material. It’s not alleged when he admitted publicly that he did it. He can’t even keep a secret in 140 characters or less on Twitter, did anyone think he could or would keep State Secrets from Putin?

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Last week I had a neurology check up. I love this guy. He took it very seriously that I had a migraine that was on its ninth day, and showed no sign of alleviating. I’d been taking my daily med religiously; I’d been taking the Imitrex when it got out of control. I’d even been taking Advil on occasion in order to make it through work. I told him that I’d missed two days of work in spite of it all, and wasn’t sleeping even on the weekend.

He prescribed Prednisone, which he said would likely leave me feeling wired like after having way too much caffeine. He said not to take the Imitrex with it, because the efficacy of the Imitrex would be non-existent while on the steroid. I should feel better after the 2nd or 3rd day, taking 5 tablets the first 3 days in the morning; then 4 tabs; then 3; and so on.

I started the Prednisone on Wednesday of last week. I’m feeling “better” but the weather we’ve had hasn’t entirely helped. I’ve had restless sleep thanks to pain, which of course hasn’t helped. Over the weekend any rest I attempted was interrupted by the girls, the Mister, or Leo calling for his Mama. That dog likes to wake everyone up by 7:30 am. If I’m not downstairs by 8:30 am on a weekend he calls me specifically, with this whiny barking that gets urgent, so I end up having to go downstairs to let him hug me. Yup, he’s a hugger. I had to train him to be a polite gentleman dog and hug “properly” so that he wouldn’t knock me down. Goober.

I think that if I can get some long, uninterrupted sleep while on the Prednisone, it’ll work much better. The cats like to take care of me when I’m in bed, so they won’t be a problem. It’s the rest of the clan. 🙂

I went to work today, and I’ll be honest, I should have stayed in bed after the kids got on their rides to school. The Prednisone isn’t wiring me up, it’s making me sleepy. Neat trick.

What worries me at the moment is that if that damned Trumpcare bill passes? Migraines aren’t covered. I could be denied healthcare coverage simply for my migraines. Forget everything else I have to cope with. Migraines can keep me from any sort of healthcare insurance because the bill, if passed into legislation, will allow insurance companies to deny me coverage as a pre-existing condition. That means out of pocket if I see my neurology; if I have to go the emergency room for debilitating migraines that only the hospital can handle; for any of my migraine control medications. That’s thousands upon thousands of dollars a year. If they deem me suitable to cover at all, migraines alone could raise my premium thousands upon thousands of dollars a year.

Just the migraines.

I’m not talking about a little pain in the head. I’m not talking about a headache that some rest and avoiding sex for a night will take care of.

I’m talking about truly debilitating problems that are neurological in nature. Migraines are painful in the eyes, behind the eyes, in the top of the head, behind the head. They cause vision problems. There are sparkles, floaters, auras in front of the eyes. There’s tunnel vision. There’s blackout vision, where nothing is visible at all. There’s vertigo. There are auditory problems, sometimes a blocking of the ears and sometimes hypersensitivity. There can be auditory, visual, tactile, and olfactory hallucinations. Any combination of these symptoms can cause nausea, and vomiting. Fever can occur during migraines. Difficulty and slurring of speech can occur. Inability to walk and stand upright, or even to sit. Light sensitivity. Skin sensitivity.

There is a complete lack of function. It’s debilitating. Literally debilitating. The worst of a migraine is like having a seizure and stroke at the same time. It takes a lot out of you physically and emotionally. You want to scream, cry, beg, plead, but you can’t even think straight let alone speak. You’re forced to ride it out.

Luckily, most of the time mine have been under control by taking Topomax daily. I take the Imitrex for breakthrough migraines that need to be put under control when Advil doesn’t work. After a week, more than that, when that didn’t work, I finally needed to figure out what to do with my doctor. And if this doesn’t help, I don’t know what the next step is. But we’ll get there.

I’ll only get there if the current law, the AHCA, remains in place.

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