Archive for the ‘Chronic Fatigue’ Category


As a life blogger, it’s not exactly a rare thing to have difficulty choosing a topic and writing about it. Writer’s block is a real thing. 🙂

What I’ve been having trouble with for the past month is on the other end of the writing spectrum of difficulty: I’ve been trying to write about the dumpster fire that is the current White House Administration and fraudulent president, but every time I try to write something it’s either obsolete before I finish writing or there are six other things that should either be added or have their own entries.

While I thought it would give me satisfaction to watch Trump go down in smoke and flames, while I dance around him pointing at those who voted for him singing, “Told ya so!” it’s really giving me no satisfaction at all. I’m not dancing. I’m not laughing. I’m not singing.

I never really wanted to do the dance. I do enjoy, a little bit, the occasional pettiness of telling someone, “I told you so,” but I’m sporting about it. I tell them ahead of time that if I’m right about something and they go ahead and do the opposite, that I’ll say, “I told you so.” I’m equally sporting in that if I don’t give the warning, I won’t say it.

I did want to be wrong about Trump with every fiber of my being.

I’ve prayed harder than I ever have in my life for his success; for him become a true patriot; for him to care about others besides himself; for him to be ethical, moral, kind, compassionate, generous, and to be so even when it’s in private and not a photo op; for him to be honest, truthful, and to expect the same high standards from those he surrounds himself with.

What I am is embarrassed, ashamed, fearful, and anxious that what I thought could happen was far exceeded prior to 100 days. Those feelings have doubled in the days since April 29th 2017.

America is viewed globally as weak and as a laughingstock. We are viewed as extremely volatile and dangerous. We are viewed as ignorant and undignified. After all, we “elected” a man without education, class, morals, ethics, refinement, nor any sort of interpersonal or soft skills and is utterly lacking in business skills or common sense.

Because I simply can’t get into everything without my skull imploding and my fingers turning bloody from typing, let me share this:

We have “no way to know” if the Russians bugged the Oval Office when they visited Trump the other day. No way to know? NO WAY to know? Please, Mr Tillerson… Rex…  Please Rex, give us something anything please oh please give us something more than “we have no way to know” please omg please are you fucking kidding me? We don’t have some way, I don’t know, using some sort of technology from one of our intelligence agencies or something to detect bugs? Are we really that inept? Or are we that broke? Do spy movies and TV shows have a bigger budget than the White House Security and NSA for really cool anti-intelligence spy intelligence technology shit?

How about you reassure us that the Russians being confused about what was supposed to actually be considered classified material during that 25 minute meeting isn’t far more concerning than it sounds? How about reassuring us about the fact that Trump shared 50 unscripted things with them? You know, classified thing; things he wasn’t supposed to tell them that are apparently, you know, considered classified. Were there any launch codes in there? Locations of black ops teams? Details about our fighter jets and missiles? Mrs Field’s Cookies recipes?

I’m thinking that what the Russians are really saying is,

“We’re confused. What classified intel do you think he told us… that we didn’t already know?”

I’m a mother. I’m a wife. I can read between lines.

It’s pretty easy to read this: stop saying that Trump “allegedly” told the Russians classified material. It’s not alleged when he admitted publicly that he did it. He can’t even keep a secret in 140 characters or less on Twitter, did anyone think he could or would keep State Secrets from Putin?

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Last week I had a neurology check up. I love this guy. He took it very seriously that I had a migraine that was on its ninth day, and showed no sign of alleviating. I’d been taking my daily med religiously; I’d been taking the Imitrex when it got out of control. I’d even been taking Advil on occasion in order to make it through work. I told him that I’d missed two days of work in spite of it all, and wasn’t sleeping even on the weekend.

He prescribed Prednisone, which he said would likely leave me feeling wired like after having way too much caffeine. He said not to take the Imitrex with it, because the efficacy of the Imitrex would be non-existent while on the steroid. I should feel better after the 2nd or 3rd day, taking 5 tablets the first 3 days in the morning; then 4 tabs; then 3; and so on.

I started the Prednisone on Wednesday of last week. I’m feeling “better” but the weather we’ve had hasn’t entirely helped. I’ve had restless sleep thanks to pain, which of course hasn’t helped. Over the weekend any rest I attempted was interrupted by the girls, the Mister, or Leo calling for his Mama. That dog likes to wake everyone up by 7:30 am. If I’m not downstairs by 8:30 am on a weekend he calls me specifically, with this whiny barking that gets urgent, so I end up having to go downstairs to let him hug me. Yup, he’s a hugger. I had to train him to be a polite gentleman dog and hug “properly” so that he wouldn’t knock me down. Goober.

I think that if I can get some long, uninterrupted sleep while on the Prednisone, it’ll work much better. The cats like to take care of me when I’m in bed, so they won’t be a problem. It’s the rest of the clan. 🙂

I went to work today, and I’ll be honest, I should have stayed in bed after the kids got on their rides to school. The Prednisone isn’t wiring me up, it’s making me sleepy. Neat trick.

What worries me at the moment is that if that damned Trumpcare bill passes? Migraines aren’t covered. I could be denied healthcare coverage simply for my migraines. Forget everything else I have to cope with. Migraines can keep me from any sort of healthcare insurance because the bill, if passed into legislation, will allow insurance companies to deny me coverage as a pre-existing condition. That means out of pocket if I see my neurology; if I have to go the emergency room for debilitating migraines that only the hospital can handle; for any of my migraine control medications. That’s thousands upon thousands of dollars a year. If they deem me suitable to cover at all, migraines alone could raise my premium thousands upon thousands of dollars a year.

Just the migraines.

I’m not talking about a little pain in the head. I’m not talking about a headache that some rest and avoiding sex for a night will take care of.

I’m talking about truly debilitating problems that are neurological in nature. Migraines are painful in the eyes, behind the eyes, in the top of the head, behind the head. They cause vision problems. There are sparkles, floaters, auras in front of the eyes. There’s tunnel vision. There’s blackout vision, where nothing is visible at all. There’s vertigo. There are auditory problems, sometimes a blocking of the ears and sometimes hypersensitivity. There can be auditory, visual, tactile, and olfactory hallucinations. Any combination of these symptoms can cause nausea, and vomiting. Fever can occur during migraines. Difficulty and slurring of speech can occur. Inability to walk and stand upright, or even to sit. Light sensitivity. Skin sensitivity.

There is a complete lack of function. It’s debilitating. Literally debilitating. The worst of a migraine is like having a seizure and stroke at the same time. It takes a lot out of you physically and emotionally. You want to scream, cry, beg, plead, but you can’t even think straight let alone speak. You’re forced to ride it out.

Luckily, most of the time mine have been under control by taking Topomax daily. I take the Imitrex for breakthrough migraines that need to be put under control when Advil doesn’t work. After a week, more than that, when that didn’t work, I finally needed to figure out what to do with my doctor. And if this doesn’t help, I don’t know what the next step is. But we’ll get there.

I’ll only get there if the current law, the AHCA, remains in place.

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I have good news! Are you interested?

I went to my pain management and spine specialist last Wednesday after work. During the appointment we went over the X-Ray results for my hips and lumbar spine due to the exacerbated pain I’ve had since the fall my beastly dog caused on a walk. There was a concern that my hip fractured or broke.

I’ve mentioned before that my lumbar spine already has bulging discs. The X-ray was for just the lumbar and hips, and since my MRI during the summer, that’s deteriorated, likely due to the fall.

Neither of my hips, which have arthritis, are broken or fractured. That’s the excellent news. The arthritis, however, has also deteriorated and has done so more significantly in my left hip. That’s likely due to the fall.

I’m relieved that there aren’t any fractures. That means that we can take “putting a pin in it”off the table. That’s a huge relief. I guess now I’m wondering what my treatment options are, because I met with the APRN instead of the doctor. When I have pain that, in the moment, is at least a 10 what do I do? I can’t support my body when I’m standing up because the pain is so severe. I feel as if my skeleton is being ripped apart and shattered with a hammer. It’s scary, and it takes my breath away.

Since I’m 42 and never had a bone density test, I’ve requested one to be ordered. I know that it’s been an issue in my family, and with the arthritis, maybe it can help with therapy. I’m already doing aqua-therapy but anything at all that might help relieve this pain and I’m in. The APRN didn’t indicate that the degeneration is severe enough for surgery to repair the arthritis, so I’m guessing that’s not an option right now. And honestly I think that has to be a last resort.

It’s funny, though… my PT for aquatherapy seems to think that surgery with additional PT is preferable to additional medications. She has Fibromyalgia, too, so I’m assuming that she’s aware that every time someone like us has a surgery it further suppresses our immune system because the body has to fight so much harder than is typical to heal, and to fight off even simple infections and illnesses. We also have to cope with having all of the medications administered during a surgery coursing through us for months which affects the medications we’re already on. Anesthetics stay in the body for up to two years, especially when it’s administered in large doses.

I would rather exhaust all other options before considering surgery. Just like before I agreed to try pain medications, I exhausted every other possibility first. And sure… I kicked myself and wondered why I didn’t go to the pain management specialist years sooner when my PCP first suggested it, but this isn’t the same thing. I have a hard enough time healing from paper cuts. 😉

I know, I’m putting the cart before the horse. It was just a conversation I had with my PT on Friday. I’m just trying to work it out in my head a bit. And maybe the APRN didn’t let on how bad it really is. She’s been known to do that.

Oi. I need chocolate. Good chocolate. Better yet, I want someone to give me good chocolate.

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I woke up with a feeling this morning, attached to a phrase:

Purple Rose Inside Dew Drop; found on Google images, no original credit was found

Purple Rose Inside Dew Drop; found on Google images, no original credit was found

A single dew drop can affect the entire blossom. Such is the effect of Fibromyalgia.

I wish I could remember where I first read that; all I remember is that when I did, I cried. I’ve never forgotten it. For some reason it’s been on my  mind today. I wish I could give that quote proper credit.

While thinking about that single dew drop, it made me think of this poem by Issa, also known as Kobayashi Issa, a Japanese poet known for some beautiful Haiku.

 

 

 

 

 

A world of dew,
and within every dewdrop
a world of struggle
Issa 

 

In the cherry blossom’s shade
there’s no such thing
as a stranger.
Issa

 

I found this one below on a site called HaikuGuy.com where he’s compiled 10,000 out of 21,000 of Issa’s poems. This one makes me think of Leo, my dog:

1806

.草の露先うれしさよ涼しさよ
kusa no tsuyu mazu ureshisa yo suzushisa yo

dewdrops on the grass
at first so happy!
so cool!
Issa

Since I’m sharing quotes I enjoy here’s another one:

“Where flowers bloom so does hope.”
–  Lady Bird Johnson

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I really need to write an entry about managing my spoons per day, because at the moment I’m having trouble leaving myself enough to even get through until 4:00 p.m. during the school week.

I know that I need to recenter myself, refocus, and remember to simplify. I need to use the tools at my disposal.

I need to remind myself of how to do those things and what those tools are.

Before I can even write that blog… I need to take a big breath. In through the nose to the count of five, with the eyes closed. Pause. Out through the mouth until all of the air is gone. Pause. Breathe in through the nose to the count of five. Pause. Breathe out through the mouth until all of the air is gone. When you do this breathing exercise, think of nothing except the breathing. Focus and direct all efforts on your breathing. Do this five times without rushing the process. Keep your eyes closed, and don’t allow outside distractions, such as children or spouses but most especially your phone to interrupt.

This exercise takes as long as it takes. Do it twice if you need, but this exercise will force your brain, body, and anxiety to relax. Bringing in oxygen and forcing out thoughts does wonders.

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As it so happens, thanks to recent news, Jill Stein and that other guy, um, Gary Johnson are completely out of the question as well as long as Senator Clinton stays in the race.  As of today Gary Johnson has as chance of less than 0.1%. That’s not even a quarter of a percent of a chance of winning. Jill Stein isn’t even placing a fraction of a single digit percentage. They would both have to completely change their platforms to gain any sort of traction with anyone; and they would have to, well, not be Independent or Green Party. 😉 Because with their individual platforms and the ideals of each party? I have to go with,

“Thank you, hell no.”

 

If you’ve followed my blog at all lately, you’ve probably noticed that I’m not a Trump supporter. 😉 I’ve questioned why people support him. But then… I may have been a little insulting at times in my passion for my intense dislike of Trump regarding just how little I understand why reasonable people could even consider voting for Trump, but then again ‘m not running for office.

You’ve probably guessed by now if it weren’t obvious that the only option I find reasonable is Senator Clinton. She’s by far the safest choice.

Anything she does is under a microscope. Things from three decades ago are brought under scrutiny, twisted into half-truths and outright lies, and turned into spiteful memes. Present non-issues are “trumped up” if you will and blown into nontroversies until every single Trump Supporter and I Already Hate Hillary Clinton Frother laps it up with a big fat ladle.

They’ll pick apart her statements where she apologizes, even when she has no need to apologize. They’ll comment on how that’s a lie or only stated to gain voters or it’s rhetoric. That’s to be scrutinized crumb by crumb, ingredient by ingredient, until it’s lost all meaning. She can talk about her grandchild or daughter, and that has ulterior motives.

She coughs, and the world is on notice and thinks she’s not being transparent enough in her campaign or in regard to her health.

If only any month’s worth of comments Trump has made were scrutinized by the media so much as any single comment made or cough and antibiotic taken by Hillary Clinton at any given moment. Pneumonia is viewed as a death knell, apparently, and deceitful to boot. Who knew that allowing herself to become dehydrated and catching the common cold now and then wasn’t transparent, was deceitful, and she was on her deathbed. It apparently adds to the mountain of criminal activities she’s involved in while trying to destroy America in her conspiracy with President Obama.

Then this landed in my lap today from a friend on Facebook:

Pundits claim Clinton had a bad week. Next to Donald Trump’s seven days of gaffes and scandal, that is insane.

Source: An absurd week in America’s two-tier election – Macleans.ca

 

Well, I look forward to the day that we can call it the Ovulation Office, thank you very much.

Now, I’m not giving Senator Clinton a free pass. I don’t believe she’s perfect. I haven’t always supported her. In fact, for the majority of my life, I’ve “hated” the Clintons. The thing is, I’ve grown up. I’ve done research in unbiased sources. Some of what I thought I knew, I was proven right except not in the way I thought and most of what I believed was disproven.

For instance, calling half of Trump Supporters “a basket of Deplorables.” I mean… Trump likely doesn’t even know what the word means but most of his fans do, and many of his supporters are educated and are on the fence on whether to support him or her.  I might agree with the sentiment that there are many, many deplorable Trump Supporters, and there’s very good reason. But the fact is that TRUMP is deplorable.

There are many HRC supporters who have been asking what the big deal is in her insulting Trump voters when Trump has been nothing but crude, rude, crass, vulgar, and outright insulting to every voter out there except for racist, sexist, homophobic, or xenophobic voters. In fact, the wording she used wasn’t crass or vulgar.

She was composed and used a relaxed, almost humorous tone of voice. She was speaking to the educated of America. She was speaking to those whom she knew were already on her side and didn’t need rhetoric or cajoling or politicking. She was in a safety zone.

That was exactly the problem.

Due to who she is, and what she is ie. a female AND a Clinton, she doesn’t have a safety zone.

She’s automatically being held under a much greater microscope and to a much higher standard than Trump or any other male. She’s always had to hold herself to a higher standard, and she always has just like any other woman in virtually every career that exists. She’s always carried herself with dignity and grace under pressure, and this was a slip. It wasn’t even as bad as that slip that Mitt Romney made when he denigrated all voters during his campaign for President.

During election seasons, when you’re running for any office but especially for President of the United States, you simply don’t insult the voters. You don’t insult the voters of your opponent because of the off chance you might have had that they would have become your voters at some point in the near or far future. If you call your opponent’s voters “deplorable” even if you specify “half of them” then those people are going to wonder if you really meant “all” and therefore…. you’ve personally insulted every single voter of the opponent. They now have a personal reason to hate you. They don’t simply hate Hillary for the lies spun from half truths by the GOP, or because they dislike that she’s female or a lawyer or a former first lady or a Democrat or “too liberal” even though she’s practically a Republican, or her wardrobe, or who she used to be friends with, who donates money to her campaign, who her husband used to be friends with, the colors lipstick she chooses, the sound of her voice, etc.

They now believe that even if they momentarily supported Trump, HRC finds them deplorable and will automatically assume them to be racist, sexist, homophobic, and xenophobic. You have to be careful with the voters. Most of them may be harsh to each other, even in their own circles and families, but they have very thin skins if they think the spotlight is on them. Anything that seems critical of anything they support and it’s a personal insult. And even if they do have these deplorable qualities, are they really irredeemable? Is that really a judgment on their character that any candidate should make? No, it’s not.

Even if they do have these deplorable qualities, who wants to say that those qualities are racist, sexist, homophobic, xenophobic, or any sort of -ist or -phobic or a bigot? Not when they have justification after justification after justification for being anti-whatever it is.

Those things are very true of Donald Trump. And yes, those things are very, very true of many of his fans. But at the same time, there are people who are voting for him not because they support him but because they feel they can’t support any other candidate. Many people are single issue voters, or can’t get past a particular story they heard and don’t research well enough to find out if something was as true as they believe. Many people don’t care to know. Many people just won’t vote for The Woman or A Democrat.

I think she knows these things, and even if it’s more rhetoric, she nearly immediately apologized and expressed regret for her comments. She then dropped the other shoe, and that cracked me up.

Trump has tried that maybe once or twice, and it backfires. It’s always a crass and backhanded nonpology. Hillary Clinton backtracked quite eloquently, regretting that she generalized so grossly and shouldn’t have said “half.” She put the onus of lifting up individuals that are racist, sexist, homophobic, xenophobic, Islamaphobic, etc. back onto TRUMP. Essentially she called him out for glorifying those traits in people who find those qualities admirable… even if they don’t like the words used to describe those qualities. She called Trump’s social media contributions to be offensive, hateful, and mean-spirited rhetoric. She did state that some of those people are irredeemable (which is true) and “Not America” which is also true of the IDEAL IDEA of America.

She also said that his supporters are people that are looking for change in any form because of economic anxiety and she urged her supporters to empathize with them.

Oh yeah, and the e-mails too. What started as a non-troversy to begin with, and is turning out to be one of the BEST things she ever did. After all of the investigations and committees and waste of tax dollars, because the Republicans have this need to discredit her and try to make her look foolish; after an FBI investigation found her to have done nothing criminal; it turns out that just as it was stated early on in the first week or two that her servers were FAR MORE SECURED than the government servers at that time. It also turns out that if her servers were being used today they’d be more secure than the currently updated servers the government uses. Because her servers were SEPARATE and therefore much, much harder to hack. That was the whole point of several government officials having their own servers.

So I found this below, which was written last week. And to think, I was almost THISCLOSE to thinking that the e-mail stuff actually was a bit more scandalous than I originally believed, and I’d have to eat a bit of crow. That I didn’t actually know what I was talking about way in the beginning.

 

The attention paid to it has far surpassed the boundaries of the facts.

Source: The Hillary Clinton email story is out of control – The Washington Post

You know, I just realized that I never once commented on the positive aspects of HRC’s campaign. I pulled a stunt that I HATE from certain Trump fans. My apologies. I clearly had some purging and pontificating to do! LOL

So, I’ll save the, “why I support HRC versus other candidates” post for another day. This one got out of control and too long. 🙂 Ta, loves!

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You know what I just realized? I write a lot about disability and advocating for disabled individuals. I write a lot about acceptance in disability, whether you’re a parent, friend, coworker, or even someone who has never met someone with a disability (that you know of); and yet I’m not sure that I’ve ever explained in the simplest of terms what a disability is.

I just get so fired up.

Disability is a physical, neurological, or mental condition that limits a person’s movements, senses, or activities. It may cause impairments, infirmities, and disadvantages, to performing activities in society due to the barriers that exist.

What I try to address is this:

Barriers exist not because someone is disabled, but because society as a whole hasn’t figured out how to:

  • Fully accept disabilities as normal and nothing to be ashamed about
  • Fully accommodate all disabilities and invest in the people who have them
  • Incorporate Universal Design so that ALL PEOPLE may participate in ALL ACTIVITIES equally

And those things are important because people who have disabilities are PEOPLE. People who are deserving of being treated with dignity, respect, grace, and equality to be viewed as valued members of society that contribute as equally as anyone else can.

This is a lesson that you’ll learn well when you become disabled through an accident, illness, or age if you’re not presently disabled. 🙂

 

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