Fibro Frustrations

#Fibro – Awareness Day (Photo credit: sand625)

People who are not me and are otherwise intelligent are allowed to have brain farts, right? I mean, in theory they are.  That doesn’t mean I can’t be frustrated as an 18/20 trying to squeeze into an 8/10 on a 98* day when my doctor‘s nursing assistant can’t understand a simple request and why I’m requesting it even though I explained it repeatedly.  Maybe it’s because so many medical specialists still view Fibromyalgia as the medical version of the F*bomb? I don’t know.  I just want to smack people sometimes.  I hate people today.

I need a single page in my file from a single appointment showing that we had a particular conversation.  I need her to sign paperwork that she’s aware of certain other doctors I see for chronic issues as well.  I need it to give to a BRS counselor this week to help prove my fibromyalgia and history since my dink gastroenterologist decided to withhold the diagnosis portion of my file, pack up his practice and not have someone take over his practice, and sell vitamins and supplements as his calling instead.  Don’t get me started.  I may have blogged about this already anyway.

I’m so sick of people not willing to help me right now.  I had another doctor tell me that she didn’t feel comfortable going into detail for the paperwork because she’s not the one treating me and didn’t diagnose me for fibro.  What was worse, though, was that she told me that because of her profession her default position on Fibromyalgia is that it’s completely psychosomatic anyway.  I think I started off my schooling of fibro with, “Excuse me, really???”

I can’t find a rheumatologist willing to take me on as a patient either, but the more I learn about fibro and the more I learn about my own symptoms, the less I think it’s really something a rheumatologist can treat anyway.  It’s muscular-skeletal, yes, but it’s a disease that affects the entire body and is immune-suppressing as well.  It affects nerves, joints, muscles, immune system, nervous system, digestive system, neurology, neuropathy, vision, and more.  A rheumatologist can only really treat one aspect of the disorder.  That’s why people go to so many doctors for so many years covering issues with virtually every system before a doctor figures out the patterns and puts it together.

One of these blogs I’m going to have to list all of my symptoms that come and go the ones that I have on a daily basis.

Related articles

• Fibromyalgia: Information and Treatment by Rich Marsiglia (drbradshook.com)
• Fibro Fog (the brain stealing part of Fibromyalgia) (dailylifewithfibromyalgia.com)

Advertisements