Today was the initial consult with the neurologist for my 5 1/2 yr old. It went well. Grace liked the doctor, who turned out to be my husband’s brother’s neurologist growing up (Frankie had gran mal seizures and other brain issues before passing in 12/2000). Small world.
Here’s the short version:
The neurologist agreed with the child psychiatrist’s diagnosis of Asperger’s Disorder. That’s equally a relief and a disappointment. It’s good to have confirmation, but, ya know, the confirmation is for autism. Not that I had any doubts.
She is likely having petite mal/Absence/Silent seizures.
She is likely ALSO just staring into space like a little space cadet, in relation to the Asperger’s Disorder.
Because she’s had vertigo and occasionally complained of pain around her ears and eyes, she’s likely developing migraines like me and my whole side of the family.
It seems that people on the Autism Spectrum are more likely to have some form of seizure disorder. Like, 70% of ASD kids have a high risk of having seizures, both the kind that can be outgrown by puberty. I think they’re sometimes call Febrile seizures.
People on the ASD are ALSO more likely to “space out” as well. So it seems it’s tag-teaming Grace.
The next step is getting the EEG, which was prescribed today. While I was there, the nurse filled out the fax request and sent it to the local children’s hospital. I expect a call for an appointment within the next few days. And then ten days after that appointment, we’ll meet with the neurologist for the results.